living-well-resources-living-well

Living Well:
Key Points

Living Well: Key Points

When you’re diagnosed with a chronic condition affecting your muscles, bones and joints you may feel overwhelmed and worried about your health. There are many things you can do to take control and live a full, healthy life. The first step is learning all you can about your condition.

The following tips will help you to understand your condition, make informed decisions and live well with a muscle, bone or joint condition.

Learn about your condition

Ask questions, including:

• what condition do I have

• what are the symptoms

• how is it diagnosed

• what can I expect in the future

• what treatments are available

• what are the ways I can manage it?

The more you know about your condition, the more control you’ll have.

Work with your healthcare team

There’s a huge range of health professionals who can work with you to manage your condition. You may see them on an ongoing basis, or you may visit them from time to time as needed. Find out which medical and other health professionals will be helpful in managing your condition. Work with your healthcare team to select the best treatment options that suit your lifestyle and health needs.

Understand your treatment options

Discover the treatment options including medication, exercise and massage that can help manage the pain and stiffness that you experience, as well as treatments that may slow the development of your condition. Know the options available, and discuss with your healthcare team whether they’re right for you.

Arthritis Foundation USA: Arthritis treatment options

Arthritis Research UK: What are the treatments for arthritis?

Explore different types of physical activity

Regular physical activity benefits everyone, and it can help to reduce pain, strengthen muscles and maintain joint function. It can also improve the fitness of our heart and lungs, increase bone strength, reduce body weight, improve your sleep, energy levels and mental wellbeing.

Talk with your doctor, a physiotherapist or exercise physiologist for more information and advice tailored specifically to your unique situation.

Arthritis Foundation USA: Exercises for arthritis

American College of Rheumatology: Exercise and arthritis

Learn how you can make healthy food choices

There’s little evidence that particular foods are good or bad for people with muscle, bone and joint conditions. And there’s no diet proven to cure these conditions. But eating a healthy, well-balanced diet is important. It will help you maintain a healthy weight and reduce the load on your joints. Eating well will also help protect you against other health conditions. For bone health - whether you have osteoporosis, or to protect against getting it – it’s important that your diet includes the necessary amount of calcium for your age and gender. Talk with your doctor or dietitian for more information and advice.

Eat for Health - Australian Dietary Guidelines

Arthritis Research UK: Diet and arthritis

Identify effective pain management techniques

There’s no ’one size fits all’ when it comes to pain management. Not all pain management techniques will suit every situation or every person. Identify a range of strategies that you find effective so that you have a collection to choose from to suit particular situations, such as ice packs to reduce swelling, medicines for pain relief, relaxation techniques to ease tense muscles. There are many options available to help you manage and live with pain. Talk to your healthcare team for more advice.

MOVE: Managing your pain: An A-Z guide

National Prescribing Service: Chronic pain explained

Manage your fatigue

Recognise that there may be times when you experience periods of mental and physical tiredness, or fatigue. This fatigue can make every day activities seem overwhelming. Fatigue may be caused by lack of sleep, pain, medications, depression or the condition itself. There are many things you can do to help combat this fatigue including exercise, pacing your activities through the day, getting a good night’s sleep and talking with your doctor about your medications.

Arthritis Research UK: Fatigue and arthritis

Better Health Channel: Fatigue

Recognise the emotional challenges

Recognise and acknowledge the emotional challenges that come with managing your condition. It’s natural for you to feel a range of emotions, including fear, stress, depression and frustration, when living with a chronic condition. It’s important that you acknowledge these feelings. You may want to talk with a counsellor or psychologist, write in a journal, talk with a family member or close friend, or join a support group. Don’t ignore these feelings.

Arthritis Ireland: Coping with emotions

Research complementary and alternative treatments

If you’re interested in complementary and alternative treatments, do your research. These treatments include things such as acupuncture, massage, herbal medicines and aromatherapy. Some treatments can be useful in helping you manage your condition, while others will have no effect. And some have side effects or may interact with your other treatments. It’s important to check the qualifications of the person providing the treatment and to talk to your healthcare team about the treatment and whether it is right for you.

Arthritis Research UK: Complementary and alternative treatments

Get a good night’s sleep It can be difficult when you live with a chronic muscle, bone or joint condition to get a good night’s sleep. Pain, muscle tension, stress and other factors can interfere with your sleep. Not getting enough good quality sleep can impact on the pain and muscle tension you experience. This can become a vicious cycle. If you’re experiencing difficulties with sleep, there are many things you can do. Start by talking with your doctor. Call our Help Line and speak with our nurses. Borrow sleep resources from your local library.

Arthritis Research UK: Sleep and arthritis

Working with a chronic condition

Working is good for your health and wellbeing, but sometimes your condition may interfere with your work. Muscle, bone and joint conditions can be unpredictable – you can be fine one day but having a ‘flare up’ the next. This unpredictability can be stressful. Talk to your doctor or allied healthcare professional about ways to help you stay at work. There are many things you can do to enable you to continue working such as pain management techniques (e.g. mindfulness), medication, modifying the workspace, using aids and equipment (e.g. modified mouse and keyboard) and having some flexibility with the hours worked.

Arthritis Foundation USA: Finding a job and working with arthritis

Arthritis Research UK: Work and arthritis

Arthritis Care UK: Working with arthritis

Find aids to assist with daily activities

Sometimes tasks we take for granted may be affected by our condition. For example, if you have arthritis in your hands you may find turning a tap becomes difficult. Or if you have back pain you may find reaching down to tie your shoes exacerbates your pain. This impact on the ability to do everyday activities can be upsetting and may affect your feeling of independence. The good news is there’s a large range of aids and equipment available to help you with activities of daily living. Items available include aids to help with cooking, cleaning, bathing, writing, mobility, technology and driving. The items needed will vary greatly from person to person, so it is a good idea to talk to an occupational therapist and have an individual assessment.

Have a support team

Family and friends can help support you physically and emotionally with the day-to-day ups and downs of living with a chronic condition. It’s important that you’re honest with them so they can provide the support you need – don’t be afraid to ask for help. As well as support from family and friends, you may be interested in joining a peer support group. Meeting with people who know what you’re going through, who have similar conditions and experiences, can be extremely beneficial. MOVE has many peer support groups. Most of these groups meet face-to-face, but there are several that you can access via websites or social media. Why not reach out to a group today?

Keep a diary or journal

It can be helpful to keep a diary recording the changes in your condition, the effectiveness of medications you’re taking, how you feel physically and mentally, the quality of your sleep, and your pain and fatigue levels. This information can help you when you visit your doctor – especially if there’s some time between your appointments. It provides an accurate reflection of how you’ve been, rather than trying to recall the information when you’re sitting in your doctor’s office. To get started, you can use an ordinary notebook to write this information down. Or there are many apps and templates you can download and use. Some are free, however some do have a fee to access them.

Let’s talk about sex

Relationships and intimacy are an important part of life. At times the physical and emotional symptoms of your condition may put pressure on your relationships and your sex life. There are things you can do to prevent this from happening. Being open and honest with your partner about how you feel - both physically and emotionally - is the first step.

Arthritis Research UK: Sex, relationships and arthritis

American College of Rheumatology: Sex and arthritis

Things to remember

When you’re diagnosed with a chronic condition affecting your muscles, bones and joints you may feel overwhelmed and worried about your health

There are many things you can do to take control and live a full, healthy life

The first step is learning all you can about your condition.

How we can help

Call our National Help Line and speak to our nurses.

Phone 1800 263 265 or email helpline@move.org.au

More to explore

• Arthritis Research UK

• Australian Physiotherapy Association